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My Son - Prologue

Prologue
 
 
 
"Kody's will to live was overpowered by his disease, which he was, with no reason, born with.

"The last visit to the Medical Center was the worst one yet, it has even made his doctors question whether or not it is the time to let Kody pass on. We have come to our own realization and agree with the doctors’ thoughts and advice. Our decision to let Kody go was made with love.

"Kody has had a short time with us on this Earth; he has been in pain for what seems along time and with out our decision, would have grown to be much worse.

"The little time Kody has been apart of our lives, he has touched everyone who has crossed his path in some form or fashion. Kody is two years and three months old. It has been a great and wonderful pleasure to raise a fine and beautiful person and child as he.

"The disease that he has is rare and unbearable, and people need to know about it so that they can research or find someway to find a cure for this horrible child depriving disease. If anyone wants to do their own research, they may find many documents on the internet, just type into the search engine: Menkes Disease  ..."

 
 
My Son

My Son
Your almost there my son,
laying there in your last bed
as medications struggle to give you peace.
You haven't had this in a long time,
and I’ve shed my pain through half closed eyes.

You never deserved this,
never deserved the massive mess that had no reason to
take you slowly.

Like a monster
it set a fire
that never will pass on like you will.
In the deep of my watery eye
I can see that you won't feel this pain no more.
Even though I faced the time to agree on decisions made for you,
I know that you in some way understand,
because really, who am I to decide this fate fore you?
How could anyone?
But it was out of love for you Kody.

Some reason I feel that you will be the brightest star
that will linger in the night sky,
and I won't remember the pain you, your mother,
and even I felt while you were here.
We will remember in stone how your laughter rang our ears,
Your mouth open so far you can see your baby teeth grow.
We will always stand up for the way you would play with me, your dad,
giggle at the world when I would blow on your tiny belly,
or the sparkling master-piece of your eyes when you just looked at me;
and time and time again, you loved to dance to loud and upbeat techno music,
and wound up so much with energy no-one but me could feel,
when I sang my favorite songs, as you cooed along.

You are my son.
Always will be my son,
and your sister Emily, will too remember the times she felt your warm
arms around her as you comforted her many nights.
She will not forget the time she tried to help feed you by holding your feeding tube.

No sadness or pain can take away the roses in your cheeks,
the dimples in your hands, and small feet that kicked my face on accident once.
You are my son
and your suffering will not take you no more, because this isn't
what love is.

Love is the fact that you exist.
Love is you.
Love is the bed you lay in now.

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