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Alzheimer's Disease

Alzheimer’s disease
A Pre-senile Dementia
Alzheimer’s disease

A Pre-senile Dementia
Most people suffer some degree of brain atrophy (wasting or shrinkage) as they get older, usually accompanied by a slowing of mental processes.
Frequently the atrophy is so severe that the person suffers from senile dementia. Characteristically, this change takes place in some persons over the age of 70 sometimes much later.
In a small number of individuals, however, atrophy with resulting dementia occurs far earlier in life. Alzheimer’s disease is caused by such atrophy; the reason why it occurs is not known. It tends to develop in the 30s or 40s, and the symptoms are precisely those of senile dementia; Forgetfulness succeeded by irritability and then irrationality.
Unfortunately, there is no cure at present; Vasodilator drugs are prescribed in an attempt to improve the blood supply to the tissues of the brain.
Psychotherapy and tranquillizers or antidepressants may be used, but “Loving Care” Is probably the best therapy in this tragic affliction
        ****************************

Having been a nurse, caring for the wellbeing of Patients with this affliction, I would like to add my
Small statement.
The age range is not choosy, I have nursed patients as young as 25 years old with Alzheimer’s and as old as 97 Years old, in either case the fear of loosing one’s faculties is the hardest to bear, especially when one has had a normal active life, to be suddenly thrown into a situation whereby, remembering one’s name is a challenge, remembering one’s own child, a loving partners face, or just where you live, can be a terrifying experience, frustration can often lead to aggression, quite often by this time the patients have left their homes and are in either geriatric wards, or specialized homes.
The role of the supporting members of the family is very important, even if at times, they seem superficial. The constant jogging of memory can bring a little recognition, sometimes the patient, will remember certain members of the family, if not the important ones,  this can often lead to friction between family members. One has to remember the patients have feelings and they need to be comforted and cherished, not involved in family brawls.
Quite often in a friendly environment, the patient will form friendships with either other residents or members of staff, this is actively encouraged, as the resident will probably spend their remaining days in this establishment, which they regard as home.
Some of my best friends have Alzheimer’s disease, and who knows maybe one day, you, I, or a loved, may contract the disease, By giving them all the love you have and continuing to support them throughout their illness, will not only grant you “Grace” but will also seep through the small cracks of memories they may have, letting them know, that you still care and will always care.
           ***************************
Thank you all for reading this small effort to communicate this horrific disease, in a more understanding way than you would read from a medical journal, or hear from a medical practitioner.
(Sometimes they forget to use English ) We don’t all
Carry dictionaries.

Medical statement, supplied by Medical Encyclopedia.

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  • aboomer silver member
    December 18, 2007
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    This was wonderful of you to print this for others to help and understand what they/and their loved ones, are going through. It is harder on the family members - but that's a blessing. It is a horrible thought to realize you could lose everything about your life - and not know it. But I am glad my mom has no awareness of what all she has lost. I spend every day with her, trying to do little things, making memories for myself. I wrote a poem "small joys" that tells how I painted her fingernails for her - and ended up doing all the little old ladies that were in the nurs. home...it was a very precious moment and memory for me.
    Thank you.

  • cutiepie gold member
    August 15, 2005
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    Thank you

  • yumanbeing gold member
    August 14, 2005
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    you add a beautifully human dimension to your discussion - superb article -

  • cutiepie gold member
    September 28, 2004
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    Yes this often is the way... the patients drift into their own worlds leaving family and friends on the outside. It can be hard to accept especially if the families were close before the onset of Alzheimers. I think God in his mercy does spare the affliced any more pain by allowing them some detachment. Many thanks for your kind response

  • NurseyPoo
    September 28, 2004
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    I too am a nurse and have worked with countless numbers os Alzheimers patients. I have found that most times it is more difficult on the family and friends than the patient, Caregivers need and deserve as much love and support as we can give. The only words of consolation I've found for them is that the patient doesn't realize what is happening 90% of the time. My brother was a Downs Syndrome and, to him, his world was right and he had no real concept he was different in any way. Maybe thats one way God shows his mercy to the afflicted and his comfort to those of us who love them. I have a poem that doesn't deal directly with this situation but you might find it appropiate. Its title is Changing Roles. No need to comment on it, just use it for anyone you think it might touch. May God bless all affected by this random disease and caress them with his everlasting arms.
    ~~~POO~~~
    Edited on Sep 28, 2:22 because ''.
  • Pari Ali
    September 27, 2004
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    there were links to some poems I am sorry i lost them could you resend sorry to be a nuisance

  • cutiepie gold member
    September 24, 2004
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    Beautiful

    Thank you John, You have shown how caring and understand of this dreadful disease you and your family are. Your Uncle may not show his affection or understanding of why he is where he is, but the safety and caring of many people that surround him will calm his fears, the medication to us seems unkind in the fact that the people we now see, dont seem the same to us anymore, but without it, your uncle would be faced with his worse nighmares and that is too cruel to imagine. Uncle now relaxes in his own little world, whereby nothing can hurt or frighten him anymore. The quality of life is everything and your Uncle is blessed in his peace of mind. Who knows what demons he was fighting when he lit fires, he now no-longer feels the need to burn the evidence of battle fought within his mind. Your kindness will be rewarded and that of your brother. The visits and talking will grant your uncle comfort, touch also plays a large part, the need to touch is also a part of the healing process. Many people pull away from a cuddle or a gentle touch of the hand as being unnatural, but people with this disease need the reasurrances a cuddle can give. I am touched by your kindness and I salute you for it

  • Adios Muchachos gold member
    September 23, 2004
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    THX

    Dear Cutiepie,
    It was so good of you to post this, and I will strike the applause window, although I'm sure that is not why you put this piece in the features section.
    My Uncle, my father's brother, has been diagnosed with Alzheimers and is now living in a group home, as there is no one who can supervise his daily living but professionals.
    Yes, it came on most subtly! We even laughed at first, thinking itwas just a sign of getting older. Then the "idiosyncrasies" began to come with more frequency, and we began to worry about him.
    I live in a senior citizen complex and he had an apartment not far from us, so we thought that we would be able to watch out for him.Then he began to set small fires, and the management asked us to do something.It got worse and we still couldn't bring ourselves to have him committed. He would not go to a doctor of his own volition.
    Finally a social worker came and talked to me and they were going to come and take him away.
    He has been in a home now for the better part of a year. He is on medicine, Respirdol, which calms him of the excitability, but has done little, if anything, to help him think straight, or communicate in anything but undecipherable mumblings.
    I and my brother go to see him when, or as often as we can and he recognizes us after a while. We bring him some of the things he liked at home, and sometimes take him out.
    He looks twenty years older than when he went in there, almost as if he'd been cheating time all the while.
    The only thing that we can do, as you say, is to show him that we still care for him and that he is not forgotten!
    Once again, thank you for posting this, as people who are affected by this, or people wanting to know more about this terrible disease might want to have some insights into it.

    Regards,
    John-Las Vegas, Nevada

  • cutiepie gold member
    September 22, 2004
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    You are very welcome If it only reaches one, it has been worth it
  • Pari Ali
    September 22, 2004
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    this helps others understand what you have rightly called horrific disease. thanks for leting me post it. I hope it can reach at least some people.

  • cutiepie gold member
    September 22, 2004
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    allpoetry.com/Poem/737440 This is a poem I wrote from my mother-in-laws point of view, Her husband suffered a major stroke 18 months ago, he is 79 and she is 77, they both live at home with us. He has the mentality of a five year old and can be very difficult and agressive. I also wrote another poem called "the Victim" Link allpoetry.com/Poem/761894 this relates to how my father-in-law is now. Many thanks for sharing your memories to us all, it is appreciated

  • cutiepie gold member
    September 22, 2004
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    Thank you angie for you very sensible remarks, you are so right, "What is to be will be " Many thanks for your kind words, they are greatly appreciated
  • lgodina
    September 22, 2004
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    I watched my neighbor suffer from this wretched disease, when I was young, I would take him outside and get him to walk up and down the driveway. I remember him giving me a hard time he always wanted to sit in the middle of the driveway and pretend he was rolling a ball to me.

    I would help his wife get him dressed and take care of him. She wouldn't have a nurse come in she did all by herself. She was about 65 at the time and he was well the age of a toddler at that time. He would put pictures of his family on the dinning room table and say they are joining us for dinner.

    He always called me that girl, he would make her call me so I would take him out on a walk. I am glad I got to spend time with him and was able to help her. She was a saint in her own way. I was about 13 I guess this is a bad sickness and oneday they will find a cure for it don't know when someday.
  • MissSecret
    September 22, 2004
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    I've had a lot of experience with this disease, considering my father had it before he passed away. It is sad, just as many other dreadful disease are, i feel sorry for people who have to go throw this kind of torture, but everything happens for a reason, good or bad, and usually for the best. Even though it mostly effects the people surrounding them more than them itself, it hurts all of us, related or not, to know that human beings are being suffered like this, and there isnt much we can do about it at the moment. Its sad, its sappy, but what else can we do but sit and hope. Hope for something to drop into our hands, and when the time is right, it will. We will just have to be patient enough and it will eventually come. Yet how patient can we be?.....
    XoXoXoX . With dearest love . Angie <3 .

  • cutiepie gold member
    September 21, 2004
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    sadly this disease can strike quite early, as many others, but as I say, "there but for the grace of god go I"(Infact I didnt say it some other person did ) but I meant to say it

  • g r e y i s m gold member
    September 21, 2004
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    well, we were just talking about alzheimer's disease in psych class the other day, so this caught my attention. sorry it wasn't a poem. nevertheless, you did write it well and I definately would agree that this, as with anything, is something which can be helped by a little love.
    I must say, though I knew it could occur early, I had no idea it could as early as 25! so when I say I have it, jokingly (I'm 26) I guess I should be more careful. hehe. anyway, thanks for putting this out there and best wishes to you...
    ~ Lea

  • cutiepie gold member
    September 21, 2004
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    Many advances have been made into the study of this disease and with funding I am sure more will be made, sadly it wont help your grandmother but it could well help millions . So sad when loved ones become confused, we all reach a point in our lives, where we get forgetful or a little disoriantated, normally this can be laughed at or put down to old age, in some cases, as in your grandmothers case, it frightens to the point of not being able to live with it, remembering what a strong lady she was, you will be able to understand better than most. I believe the more active the brain can be kept, ie crosswords, puzzles, writing etc will stave off some of the minor irritants, forgetfulness will still occur, but slower.Stimulations constantly is what is required and also in some cases a light medication to help allievate some of the fears. My best wishes to you and your mum,and I would wish that you dont worry yourselves needlessly. What will be will be So take life in both hands and embrace it

  • Night Hope gold member
    September 21, 2004
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    Thank YOU for your compassion in your work...& your solace in your words...it very often makes a large difference to someone...even if you aren't always aware of it!!! Thanks, my Friend... Wanda

  • cutiepie gold member
    September 21, 2004
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    Bless you There is nothing as fearful as fear.... Understanding diseases does help to allievate many worries that families have regarding The unknown. Many thanks for your kind words

  • cutiepie gold member
    September 21, 2004
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    Thank you for your kind words, yes, sadly these diseases are horrific, but with a bit of understanding , one can cope with the fear of the unknown Many thanks for your kind words

  • cutiepie gold member
    September 21, 2004
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    I know , it can be frightening, but don't tempt providence Look on the positive side of life
  • Pinkypants
    September 21, 2004
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    Thankyou for posting this! My great grand mother died many years ago from Alzheimer’s disease and grand mother died earlier this year in March from this condition. She was so confused and frightened in the end that she starved herself to death because she didnt want to be a burden on any one anymore. My family could do nothing to stop her from starving herself - she knew inside that she was a shadow of her former self. As a proud woman, she could not live with the forgetfullness and the switch between realities - she couldnt tell what was real and what was not. She often claimed people who have been dead for years had come to the house and had tea with her. It is a sad disease which too little is known about it. I hope and pray that my mother or myself do not suffer a similar fate.

    thankyou very much for posting this

  • Night Hope gold member
    September 20, 2004
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    Awe-inspiring Write

    Beautifully presented information, Poet...you've presented a more personal look than one could find in medical journals, for sure...it IS a horrific disease...& BLESS YOU for being One they can turn to, again & again...it takes a certain something~special to even be in the medical profession...& a certain Grace to remain there...for those with loved ones afflicted by this, I thank you, very much... Wanda

  • BonBon
    September 20, 2004
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    When I seen this...I just had to read. My mother had Parkinson's and Alzheimer's. What a deadly disease. The terrible things it does to a person is horrific.
    So sad, so very sad.
    Bonnie aka BonBon
  • -Christine-
    September 20, 2004
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    Both my grandmother (who passed away a short while back) and my grandfather from my mother's side of the family have/had Alzheimer's and sometimes it's really hard, I know. This was a very informitive piece, and it's really nice to hear of all the love there is.

    Know what's funny (well, not quite funny but still ) --> the two diseases that are in my genes are Alzheimer's and Cancer. Boy, don't I feel special...



    Christine

  • cutiepie gold member
    September 20, 2004
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    Thank you for your very kind words I wish you and your's all the love and support that I'm able to give

  • SweetJane
    September 20, 2004
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    I'm so glad you wrote this. It's really good to know that there are people out there who really care about these people. I know my grandma is going someplace special when she dies, but for now I just want this world to be as heavenlike as it can be for her. I wish you luck with your writing. Keep up the love!!! *smile*

  • poetryality silver member
    September 20, 2004
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    Here's her poem: allpoetry.com/poem/816732

    Hope you can help her out!

    Much Love,
    Renee

  • cutiepie gold member
    September 20, 2004
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    You, I am sure are truly missed when not on "Duty" I am delighted this column might bring a little understand to the members of families affected. Thank you for your kind words, Renee

  • poetryality silver member
    September 20, 2004
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    Thank you so very much for posting this informative column. I just spoke with another member here yesterday about her grandmother who has Alzheimer's Disease. I work in a Nursing Home on the Dementia/Alzheimer's floor. I am off today and sorely miss the residents I have become so fond of. They can't recall my name, and everyday they meet me again for the first time. They speak jibberish more often than not, but when I recognize something familiar to them, I overuse it, so to speak. I am going to alert the other member to this column,and give her the link. She is 15 and missing the affections of her grandmother. This may help her immeasurably. Thank you so much for the wisdom and insight. The disease is a hard one to grasp by both care givers and suffers. EXCELLENT!

    Much Love,
    Renee
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