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New to this column thing

I am having this personal crisis and I am just looking for some insight from people other than myself.....I can so very easily have myself in a state of panic with little or no help so please bear with me on this!
Chronic pain and health problems......I have been suffering from chronic pain going on seven or eight years now. No one seems able to figure it out and I have been on the internet and sometimes that is SO not a good thing. I have cysts all over both kidney's ( no relation to the chronic pain ) but I do have pain in my right side up by my lower ribcage. One Doctor says ( with out a trace of doubt ) that I have poly-cystic kidney disease which is an inherited disease and while I have an Aunt and cousins with the disease my Mother does not have it so another doctor tells me it's impossible ( or rare ) that I have it. My family doctor sent me for an ultra-sound of my kidney's....the interpretation being that poly-cystic kidney disease can not be ruled out at present! I feel as if I am spinning on some invisible merry go round with no hope of it ever stopping. I don't much care for myself having it.....it is what it is but I would like to know for my children's sake. It is an inherited disease and if I have it chances are good that one or more of them will have it. How do I get the doctors on the same page and what tests do I demand be done to get a definitive answer? I'm so confused! To compound my situation I know someone personally who has kidney cancer and she is valiantly fighting the good fight BUT she was diagnosed after being misdiagnosed and her's started with a pain in her side! I do have a mass on my adrenal gland but the doctors say not to worry about it! <<<< >>>>> HELP!

more on the chronic pain later! Sorry this ended up so long and thanks for those who read. If you can help I'd appreciate it!

Marie

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